Two years ago I took Andy to a neurologist. I had concerns about him...knew something wasn't "right". I feared he may have Asperger Syndrome. I had been told by a few clinicians that I should have him evaluated because they had the same concerns.
In the matter of 5 seconds, the neurologist told me no way. He said my child instead had ADHD and Oppositional Defiant Disorder. Now, those of you who know Andy know there is no way in hell that he has Oppositional Defiant Disorder. He is the sweetest kid, doesn't cause trouble, doesn't get in trouble in school. In addition, Andy displays no ADHD characteristics other than the fact that he's wiggly, which I know is from his SPD. I tried explaining this to the neurologist but he wouldn't listen. I think he thought I was one of "those" moms who was looking for something to label my kid with.
The neurologist also went so far as to tell me that SPD is not real, it's a manufactured diagnosis that holds no weight. I wanted to punch him in the face right then and there. Anyone with an SPD kiddo knows that isn't the case. Anyone who has watched a wiggly kid get into a net swing and calm down in about 2 minutes knows it's real.
We left that appointment with me feeling angry. Angry that the neurologist so quickly dismissed my concerns, angry that he didn't listen, angry that he so misunderstood Andy and I that he thought my child deserved the ODD label.
Fast forward 2 years and here we are again. Andy's SPD symptoms are getting worse, he's been very out of sync the last few weeks. His emotions are off the charts, the meltdowns are more frequent.
Andy had his seven year check up at his pediatrician's office yesterday, and she told me she wants me to have him reevaluated by the neurologist. She thinks he may qualify for the Asperger diagnosis at this point.
Now I'm angry. I'm upset. I'm scared. I went from being told he probably had it by a therapist 2 years ago, doing research and convincing myself that it was probably true, to being told he didn't by the neurologist. Now for 2 years I've been telling people he's as close as he could be to the spectrum without actually being on it. Then I'm told he probably does have it and I should have him reevaluated.
I'm afraid that if he is diagnosed at this point, we've lost 2 years that we could have been working on it. Would it have made a difference? I don't know. He's been receiving treatment for his SPD the whole time...he's been in OT. But would he be in a different place now if he had received the correct diagnosis 2 years ago?
So, which is it? Does he, or doesn't he? I just want to know one way or the other so we can move on.